Voice of the Patient Report Design

Cure LBSL hosted an important advocacy meeting for the FDA and drug developers and compiled a manuscript, polling data, pull quotes, and patient photos for the resulting Voice of the Patient report. This 25–35 page report will serve as a reference that regulators may use when making decisions about potential clinical trials, so the presentation must be clear, authoritative, and aligned with our visual identity. The content is ready, but we need a skillful designer to assemble these materials into a cohesive, readable, and brand-aligned report that highlights the polling findings and patient perspectives. This report, once published will be publicly available on the FDA's website as well as Cure LBSL's website.

We are looking for a volunteer with Graphic Design expertise to design a 25–35 page Voice of the Patient report for Cure LBSL. The volunteer will:
- Create a full 25–35 page report layout that integrates the provided manuscript, polling data, pull quotes, and photos into a cohesive, professional design.
- Design clear data presentations (charts, tables, or simple infographics) using the provided polling data so findings are easy to read and interpret.
- Apply our Cure LBSL brand elements (typography, color, imagery treatment) to ensure visual consistency and an emotional connection with readers.
- Deliver the finished report as a distribution-ready file and provide an editable master file so our team can make edits if needed.

Organization Mission

We’re on a mission to find a cure for LBSL, raise awareness, and support patients and families.